Day 71, Monday, April 8th, 2013
As I've mentioned several times (I think), I've been on what
could be described as a steady dosing of anti-nausea meds, most notably Ativan,
which is most often prescribed as an
anti-anxiety/anti-depressant med. I'm on a fairly low dose, and I can
supplement with Benadryl as needed. I feel that this is salient to the
conversation because I have yet to experience an anti-nauseant that does not
make me feel soft in the brain. Most of the time, I feel like the inside of my
head is making that high-pitched sound that old CRT monitors made when you
turned them on. What I'm getting at is that there is not a lot happening
upstairs, and this is a very strange way for me to be. It reminds me a lot of
how things were before I sussed out my wheat issues, and the extreme cognitive
impairment brought on by the consumption of said wheat.
It's better if I drink a lot of fluids, but still... *bweeeeeeeeeeeeeeeeeee*
We've been walking around a lot, and that has been fun, but
surprisingly tiring for me. In the month and a half leading up to my
transplant, Mom and I walked everywhere.
I felt energetic, and was even starting to get muscle tone back, after more or
less six months on the couch in 2012.
In actuality, I was couch-bound for a lot longer than six
months because of the effects of the peripheral lymphoma - I coughed
constantly, and I couldn't sleep. I spent March through July in an insomniac
state and frankly, I can't believe I managed to pass all of my classes. This, coupled
with the radiation treatments I received in June on my left axilla (underarm),
followed by six rounds of chemo, meant that when we got to Seattle, I was in
the worst shape I had been for a terribly long time, possibly the worst in my
entire life (at least since grade nine). But, after extensive walking (and a
little bit of roof Wushu) for the entire month of February, I was starting to
feel a lot more like my usual self.
And then, transplant.
At first it wasn't so bad - in spite of the chemo and the
radiation, I was walking plenty, and even using the elliptical trainer in the
provided exercise room. Then, of course, there were the difficulties with my bottom and that kept me moving as little as
possible for almost two weeks (not actually a bowel joke). Since I was released
from UWMC last Monday, Ash and I have covered a lot of ground, and I have
actually found myself having to tap out and go home after just a few hours of
walking.
This, of course, will improve over time. I have a lot of
muscle to rebuild, and a lot of blood cells to remake. Or rather, it will
improve over time until the beginning of May (loosely scheduled), when I will
begin the conditioning regimen for my next transplant: five consecutive days of
"mild" chemotherapy, and another day of radiation. Immediately
following this will be my second transplant, and then the process of recovery
will begin anew.
How does a blind skydiver know when to pull the ripcord? The leash goes slack.
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