Day 112, Saturday, May 18th, 2013
The last week has seen my cell counts plummet (as they were
expected to do), multiple uses of Jake (the pump) to infuse myself with saline
and magnesium, daily injections of neupogen, the return of the
pain-in-the-butt-butt-pain, dabbling with hydromorphone accordingly, the
receiving of two units of type O negative blood (Dad had the same blood type as
I did, so while I do have the blood type of my donor, it turns out to be
business as usual), the receiving of a giant
bag of saline and magnesium, the development of a neutropenic fever,
intravenous antibiotics, my first ever ambulance ride, and, finally, my being
transferred back to the University of Washington Medical Center as an
inpatient.
I'm back inside, and most of my troubles are once again in
my backside.
The derriere damage started about a week ago, but it was low
ebb. I made my team aware of it, treated it the way I had before, and it mostly
quieted down, until a day, where, bluntly speaking, I took three enormous
poops. After round three, things were unhappy.
I had acquired sadbutt. And if that
is TMI for you, then you clearly haven't been following along from the
beginning.
This, by itself, was not enough to prompt my removal from
the SCCA House to the watchful and ever-wakeful (meaning they wake me up all of
the time, not just that they never sleep) eyes of the UWMC. It was on Friday,
when, after consecutive days of diminishing cellular returns, as verified by daily
blood draws, I was given the aforementioned two units of blood, followed by a
litre of saline loaded with magnesium.
As a result of the conditioning regimen and several of the
medications that I am on, post-transplant, my body is losing magnesium at a
ferocious rate, so I have been and am required to supplement daily,
intravenously, through my Hickman line. One of the fun things about magnesium
infusions is that they make you feel toasty-warm, from the inside out, as if
you had taken an electric blanket as a suppository and cranked that sucker to
maximum. This is relevant
because my temperature began to climb rather dramatically, after the
transfusions, as I was being given the infusion. To a certain extent, this was
to be expected, what with all those magnesium-tipped road flares going off in
my veins. I'm sure I was glowing; it was hard to see the screen of my phone for
all of the glare, and I was certainly radiating enough heat for that scenario
to be accurate. [note: I was not actually
glowing, but I was throwing off enough heat that my girlfriend would have clung
to me like a baby sloth happily clings to a tree.]
During such a lengthy process (total, about eight hours),
your vitals are taken periodically, including your temperature, and when mine
crossed 38.3 degrees Celsius, it was time for concern - that temperature is the
threshold for fever that gets you a hospital stay. It peaked shortly afterwards
at 38.8, while antibiotics were being ordered and an ambulance ride to the
hospital was being arranged. That part took about two hours. It was almost
eleven pm before the paramedics arrived, a full hour after the usual closing
time of the Infusion department on the fifth floor of the SCCA, and I felt a
little bad about keeping staff there after their shifts were over.
I scampered gingerly (very, very gingerly; not scampering at
all, really) from my bed-goes-up-bed-goes-down bed over to their gurney, where
they promptly adjusted me to an extremely odd angle, tilted forward so that
every ounce of my weight was stretching my unhappy hoop. Need I say more to
imply that the trip down to the bambalance was, ah, unpleasant? The ambulance
ride itself was rather anti-climatic. It was extremely business-like, whereas I
prefer a little banter, and there were no high speeds or sirens. I just winced
periodically from my gurney, with its five-point safety harness (they really
strap you in), and answered the paramedic who rode in the back's questions, so
that he could fill out his forms on the ride over.
I guided the paramedics through the UWMC, having spent more
time there than they had, and we ended up at my new room on the seventh floor,
where I'll be staying for at least
the next week. My fever has resolved completely, and all of the cultures have
come back negative for any sort of infectious agent, which is what I expected:
the same thing happened during my last transplant. I'm still getting several
days of IV antibiotics, just to be on the safe side, and at least I get daily
anal supervision, in case things get further
untoward down there. Did I say daily? I meant multiple times daily, at
least so far. In any event, they're keeping me here until dad's cells
(sparkles, sorry) engraft, and my neutrophils and such come back from where
they are now, which is essentially zero. This should take seven-to-ten days,
and it is only once that starts to happen that the rectum will stop trying to
assert its dominance over the rest of the body. "Yes, we get it, you're the asshole in charge; may we
stop now?"
Julius Caesar walks
into a bar and says, "I'll have a martinus, please."
The bartender says,
"Don't you mean a martini?"
And Caesar says,
"Buddy, I'm the Emperor of Rome. If I want a double, I'll order one."
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